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Director of ‘I Am: Celine Dion’ Discusses Capturing the Star’s Seizure

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Celine Dion’s new documentary “I Am: Celine Dion” on Amazon Prime Video offers a painfully intimate look at the pop star’s battle with stiff person syndrome, an autoimmune neurological condition. The film captures a raw and unfiltered view of Dion’s struggles, including a moment where she has a seizure during a physical therapy session, all caught on camera.

Director Irene Taylor opens up about the decision to include such a personal and intense moment in the documentary. She shares how Dion’s openness and willingness to share her story without restrictions allowed for a deeper and more authentic portrayal of the singer’s life.

Despite the challenging and emotional nature of the footage, Dion herself expressed that she believed the film could help her and others understand what it’s like to live with her condition. She even chose to show the documentary to her three sons, using it as a teaching moment to help them understand her experiences and struggles.

The documentary not only sheds light on Dion’s personal journey but also highlights the power of vulnerability and compassion in storytelling. By not shying away from difficult moments, the film aims to create a deeper connection with viewers and foster understanding and empathy for those facing similar challenges.

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